Overview
To continue the program of intervention development of our Northwell Roybal Center, we learned from the previous six trials that we conducted in our prior Roybal Center and decided to design two new trials.
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The long-term objective of these two programs of research is to identify the intervention effect, putative mechanism of behavior change (MoBC), and heterogeneity of treatment effect of a 4-behavior change technique intervention on forming healthy walking habits among caregivers for individuals with AD/ADRD.
Our Current Reseach
Trial
#1
Aim: Test the efficacy of a multi-component, personalized BCT intervention to encourage habitual physical activity (defined as regular walking of 1,000 or more steps per day according to a personalized walking plan) among care providers of persons with AD/ADRD via the key MoBC of automaticity.
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Learn more on Clinicaltrials.gov
Read our protocol paper describing the design of the research study
Trial
#2
Aim: Evaluate the efficacy of a personalized, multi-component BCT intervention to encourage habitual hourly physical activity among care providers of persons with AD/ADRD via the key MoBC of automaticity.
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Open Forum
Physical Activity for the Caregiver
This forum was held to gather feedback from caregivers to inform our research program focused on improving physical activity for caregivers of individuals with Alzheimer's disease and related dementias (ADRD).
Presentation Focus
Presented information about our research purpose and current clinical trials
Asked participants a series of questions about the caregiving experience
Provided and solicited insights about research participation
Requested suggestions to improve caregiver outreach
Key Findings
Physical Activity Perceptions
Most caregivers we spoke to accurately estimated regular physical activity levels of other caregivers. Some were surprised that caregivers are as physically active as they are.
Estimated Inactivity
Caregivers estimated other caregivers spend less time inactive each day than the reported average.
Hospitalization & Activity
100%
of caregivers we spoke to felt physical activity during and after hospitalization is important to extremely important.
Research Participation
77%
of caregivers we spoke to have participated in research before.
What Participants Shared About Their Experience
“My experiences were good. The teams were flexible with scheduling. I enjoyed interacting with the research staff and they provided feedback on results.”
What Support Should We Give Caregivers and People With ADRD in Research?
“Help in pushing oneself to make time for physical activity. Sometimes we are too tired.”
“It would be nice to have activities and exercises that we can do with the patients. Sometimes it helps to do the exercises together.”
Contact Us
Questions, or interested in collaborating? Reach out to us at RoybalTrials@northwell.edu
